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Endometriosis: One Step at a Time

Introduction

Welcome
Why this course
Who is this course for
What to expect
What this course is not
You are not alone
No matter what

Understanding Endometriosis

The Definition of Endometriosis
What's crucial to know
How the definition impacts our care
Endometriosis vs Endometrium
ALL our experiences matter (1:58)
Endo is a whole body disease
Let's Hear from an Expert

Endometriosis Symptoms, Diagnosis, and Treatment

Types of endometriosis
Symptoms of Endometriosis
Diagnosis
A real life example
Documenting Symptoms is Crucial
Treatment vs Symptom Management
What is the proper treatment?
Proper Care Takes a Multidisciplinary Approach

Surgical Treatment for Endometriosis

Excision vs Ablation
Recurrence
Not all surgeons are equal
There is no cure

Becoming an empowered patient

Informed consent (54:07)
Myths about endo (13:50)
You can never learn too much (29:11)
How to advocate for your health

Being Believed

You are believed here
What is gaslighting
Self gaslighting

Disparities in Endometriosis Care

Healthcare disparities
Social determinants of health
Racial and Ethnic Disparities
Why do these distinctions matter?
Endometriosis Affects All People

Pain and Endometriosis

Understanding Pain
Types of Pain
The Pain Pathway and Perception
How Endometriosis Causes Pain

Tracking Endometriosis Symptoms

Symptom Tracking for Self-Advocacy
Tools for Tracking Symptoms (10:44)

Pelvic Floor Physical Therapy

What is Pelvic Floor Physical Therapy?
Learn from Pelvic Floor PT Dr. Olson
Pelvic Floor PT: A crucial part of our toolkit (5:42)
Tools that might be used in Pelvic Floor PT (6:36)
What a pelvic floor PT session looks like (5:01)
What should I look for in a pelvic floor PT? (2:13)
Why is PT important for Endo?
Dr. Olson's personal story (3:36)
What questions should I ask?

The "Endo Diet"

The truth about the "Endo Diet"
What is anti-inflammatory? (40:17)
Tips to find what works for you
Additional Nutrition Resources

Birth Control and Hormone Suppression

What are hormone therapies?
Combined Oral Contraceptives
Progestin-Only Pills
Birth Control Implants, Devices, Injections
GnRH Medications
Informed Consent is Your Right

DIY Symptom Management

Assess What You Need
Managing flares
Create Your Personal Toolkit

Finding an Excision Surgeon

It’s a process
Starting the Conversation
Guidance from an Excision Specialist (15:18)
Questions to Ask
Training and Practice Matters

Excision Surgery Costs

Reasons Behind the Costs
The Patient Perspective
Ideas for Covering the Costs

Preparing for Excision Surgery

What to Expect (58:20)
Preparing Your Body
Surgery Checklists

Excision Surgery Recovery

Excision Surgery is One Step
Recovery Tips
Collaborative Care (13:27)
Long Term Outlook

A Surgeon’s View

Hear their "why"
It's Personal (2:25)
More Surgeons’ Stories

Building Emotional and Social Support

You Are Enough
You Are Not a Burden (3:54)
Finding a Support Group (10:43)
Sharing Your Truth
Building Your Circles of Support (35:28)

Setting Boundaries

Self Care
What are boundaries?
Communicating Boundaries
When Boundaries Get Crossed

Our mental health matters

Medical Trauma (39:11)
How to Find a Good Coach (15:00)
Mental Health Resources

Endo and Your Fertility

A message to you (6:57)
Finding Accurate Information
The Spectrum of Childless and Childfree (5:46)
Infertility and Grief (7:01)
Rosemarie’s Grief Journey (20:19)
Where to Find Support (9:37)
Books and Podcasts on Infertility

Knowledge is Power

You’ve Taken A Big Step By Being Here
Book Recommendations
Podcasts
Web and Video
Social Media Accounts
Endo Gear

Acknowledgements

With Gratitude
Our Fellow Advocates
Surgeons and Healthcare Professionals

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