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Endometriosis: One Step at a Time
Introduction
Welcome
Why this course
Who is this course for
What to expect
What this course is not
You are not alone
No matter what
Understanding Endometriosis
The Definition of Endometriosis
What's crucial to know
How the definition impacts our care
Endometriosis vs Endometrium
ALL our experiences matter (1:58)
Endo is a whole body disease
Let's Hear from an Expert
Endometriosis Symptoms, Diagnosis, and Treatment
Types of endometriosis
Symptoms of Endometriosis
Diagnosis
A real life example
Documenting Symptoms is Crucial
Treatment vs Symptom Management
What is the proper treatment?
Proper Care Takes a Multidisciplinary Approach
Surgical Treatment for Endometriosis
Excision vs Ablation
Recurrence
Not all surgeons are equal
There is no cure
Becoming an empowered patient
Informed consent (54:07)
Myths about endo (13:50)
You can never learn too much (29:11)
How to advocate for your health
Being Believed
You are believed here
What is gaslighting
Self gaslighting
Disparities in Endometriosis Care
Healthcare disparities
Social determinants of health
Racial and Ethnic Disparities
Why do these distinctions matter?
Endometriosis Affects All People
Pain and Endometriosis
Understanding Pain
Types of Pain
The Pain Pathway and Perception
How Endometriosis Causes Pain
Tracking Endometriosis Symptoms
Symptom Tracking for Self-Advocacy
Tools for Tracking Symptoms (10:44)
Pelvic Floor Physical Therapy
What is Pelvic Floor Physical Therapy?
Learn from Pelvic Floor PT Dr. Olson
Pelvic Floor PT: A crucial part of our toolkit (5:42)
Tools that might be used in Pelvic Floor PT (6:36)
What a pelvic floor PT session looks like (5:01)
What should I look for in a pelvic floor PT? (2:13)
Why is PT important for Endo?
Dr. Olson's personal story (3:36)
What questions should I ask?
The "Endo Diet"
The truth about the "Endo Diet"
What is anti-inflammatory? (40:17)
Tips to find what works for you
Additional Nutrition Resources
Birth Control and Hormone Suppression
What are hormone therapies?
Combined Oral Contraceptives
Progestin-Only Pills
Birth Control Implants, Devices, Injections
GnRH Medications
Informed Consent is Your Right
DIY Symptom Management
Assess What You Need
Managing flares
Create Your Personal Toolkit
Finding an Excision Surgeon
It’s a process
Starting the Conversation
Guidance from an Excision Specialist (15:18)
Questions to Ask
Training and Practice Matters
Excision Surgery Costs
Reasons Behind the Costs
The Patient Perspective
Ideas for Covering the Costs
Preparing for Excision Surgery
What to Expect (58:20)
Preparing Your Body
Surgery Checklists
Excision Surgery Recovery
Excision Surgery is One Step
Recovery Tips
Collaborative Care (13:27)
Long Term Outlook
A Surgeon’s View
Hear their "why"
It's Personal (2:25)
More Surgeons’ Stories
Building Emotional and Social Support
You Are Enough
You Are Not a Burden (3:54)
Finding a Support Group (10:43)
Sharing Your Truth
Building Your Circles of Support (35:28)
Setting Boundaries
Self Care
What are boundaries?
Communicating Boundaries
When Boundaries Get Crossed
Our mental health matters
Medical Trauma (39:11)
How to Find a Good Coach (15:00)
Mental Health Resources
Endo and Your Fertility
A message to you (6:57)
Finding Accurate Information
The Spectrum of Childless and Childfree (5:46)
Infertility and Grief (7:01)
Rosemarie’s Grief Journey (20:19)
Where to Find Support (9:37)
Books and Podcasts on Infertility
Knowledge is Power
You’ve Taken A Big Step By Being Here
Book Recommendations
Podcasts
Web and Video
Social Media Accounts
Endo Gear
Acknowledgements
With Gratitude
Our Fellow Advocates
Surgeons and Healthcare Professionals
Teach online with
How to advocate for your health
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